Publications

Publications from the Young Stroke Service team

Manuscripts

24 Apr 2025

International Journal for Equity in Health

How accessible are the websites of health services for people who have had a stroke?

Giummarra, M. J., Brown, E., Rose, T. A., Lannin, N. A, Parsons, B., & Power, E. on behalf of the Young Stroke Service team

DOI Link: https://doi.org/10.1186/s12939-025-02459-6

15 Jul 2024

Health and Social Care in the Community

Health services for young adults with stroke: A service mapping study over two Australian states

Giummarra, M.J, Power, E., Stolwyk, R., Crotty, M., Parsons, B., Lannin, N.A.

DOI Link: https://doi.org/10.1155/2024/8762322

Conference Papers

2023

23 Jan 2023

Advances in Stroke Recovery- Scientific Conference

It takes a village: Building Australia's first dedicated service for young adults with stroke

Borschmann, K., Thijs, V., Bladin, C., Brodtmann, A., Capurro, D., Crotty, M., Gittus, R.,Giummarra, M., Gray, K., Hayward, K., Kesic, Z., Lannin, N., McCambridge, L., Murphy, L., Parsons, B., Power, E., Withiel, T., Wong, D., Xie, I., Bernhardt​., J

24-26 May 2023

European Stroke Organisation Conference

Identifying the unmet needs of young people with stroke who have communication or cognitive needs

Borschmann, K., Power, E., Wong, D., Lawson, D., Wolfenden, B., Keating, J., Lannin, N., Withiel, T., Thijs, V., Bernhardt., J

22-25 Aug 2023

Stroke Society Conference

Expert rehabilitation and allied health services for young adults with stroke are lacking: A mapping study of Victorian and South Australian Services

Giummarra, Melita J., Stolwyk, Rene., Crotty, Maria., Parsons, Brooke., Power, Emma., Sharpe, Vanessa., and Lannin, Natasha.,on behalf of the Young Stroke Service project investigators

22-25 Aug 2023

Stroke Society Conference

Championing Better Care for Young People with Stroke: Australia’s New Young Stroke Service

Borschmann, K., Thijs, V., Capurro, D., Wong, D., Power, E., Lannin, N., Giummarra, M., Rose, T., Cadilhac, D., Parsons, B., Murphy, L., Hayward, K.S., Withiel, T., Brodtmann, A., Bladin, C., Crotty, M., Bernhardt, J.

22-25 Aug 2023

Stroke Society Conference

Addressing the Challenges of Stroke in Younger People: Australia’s Young Stroke Service

Thijs, V., on behalf of the Young Stroke Service project investigators

22-25 Aug 2023

Advances in Stroke Recovery- Scientific Conference

Championing underrepresented populations in stroke care and research: Young stroke

Wong, D. on behalf of the Young Stroke Service project investigators

10-12 Oct 2023

World Stroke Conference

Championing Better Care for Young People with Stroke: Australia’s New Young Stroke Service

Borschmann, K., Thijs, V., Capurro, D., Wong, D., Power, E., Lannin, N., Giummarra, M., Rose, T., Cadilhac, D., Parsons, B., Murphy, L., Hayward, K.S., Withiel, T., Brodtmann, A., Bladin, C., Crotty, M., Bernhardt, J.

4 May 2023

Australasian Society for the Study of Brain Impairment (ASSSBI)

Accessibility of Rehabilitation Health Service Websites following Stroke: A Need for Improved Implementation of Web Accessibility and Communication Access Guidelines

Giummarra, M., Brown, E., Rose, T., Lannin, N., Power, E., on behalf of the Young Stroke Service project team

2024

16-17 May 2024

European Stroke Organisation Conference (ESOC)

Establishing a new health service model to support life after young adult stroke

Borschmann., K., Power, E., Wong, D., Lannin, N., Parsons, B., Capurro, D., Cadilhac, D., Crotty, M., Bernhardt, J., Thijs, V., on behalf of the Young Stroke Service project team.

1-6 Jun 2024

International Society of Physical and Rehabilitation Medicine (ISPRM)

Processes of care for young adults who have had a stroke: Which aspects of healthcare are not patient-centred?

Giummarra, M.J., Reeder, S., Power, E., Rose, T.,  Wong, D., Crotty, M., Levy, T., Borschmann, K., Bernhardt, J., Thijs, V., Lannin, N., on behalf of the Young Stroke Service project investigators

1-3 Jul 2024

International Aphasia Rehabilitation Conference (IARC)

Are health service websites accessible for stroke survivors with aphasia?

Power, E., Rose, T.A., Giummarra, M., Brown, E., Parsons, B., Lannin, N., on behalf of the Young Stroke Service project team

1-3 Jul 2024

International Aphasia Rehabilitation Conference (IRAC)

Australia’s first Young Stroke Service: Embedding communication inclusion and access across multi-disciplinary clinical services, evaluation, and research.

Power,E., Giummarra, M.J., Borschmann, K., McCambridge, L., Weaver, S., Heyes, B.,Cannell, G., Parsons, B., Wong, D., Xie, I., Lannin, N.A., Hutchins, S.,Capurro, D., Ferdous, H., Gittus, R., Hayward, K., Crotty, M., Kim, J.,Cadilhac, D., Brodtmann, A., Thijs, V., Bernhardt, J., on behalf of the Young Stroke Service project team

1-3 Jul 2024

International Aphasia Rehabilitation Conference (IARC)

Getting communication inclusion into Australia's first Young Stroke Service.

Power, E., Rose, T.A., Giummarra, M., Borschmann, K., Weaver, S., Heyes, B., Cannell, G., Wong, D., Parsons, B., on behalf of the Young Stroke Service project team

3-5 Jul 2024

Global Neuropsychology Congress

Using hub-and-spoke telehealth models to translate neuropsychological rehabilitation interventions into community-based services

Wong, D., Bernard, C., Carrier, S., on behalf of the Young Stroke Service team.

29-30 Aug 2024

Smart Strokes

Establishment of Lived Experience Contributor Group for the Young Stroke Service: A Journey in Co-design and Production

Parsons, B. , Borschmann K, Weaver S, Rose T. on behalf of the Young Stroke Service team.

29-30 Aug 2024

Smart Strokes

Filling Gaps in Care for Young Adults After Stroke

Amesz, S., Taylor​, M., Borschmann, K., Wong, D., Lannin, N., Power, E., Withiel, T., Rose, T., Lonergan, A., Bernhardt, J., Crotty, M., Thijs, V.,  and the Young Stroke Service Project team.

25-28 Sep 2024

Asia Pacific Stroke Conference (APSC)

Unmet needs, quality of life, mood and cognition amongst young adults accessing the Young Stroke Service

Amesz, S., Borschmann, K., Park, A., Taylor, M., Wong, D., Lannin, N., Power, E., Withiel, T., Major, B., Lonergan, A., Bernhardt, J., Crotty, M., Thijs, V., and the Young Stroke Service Project team.