cream icon of home button. icon directs to home page.
/
Research
/
Publications

Publications

Publications from the Young Stroke Service team

Manuscripts

15 Jul 2024

Health and Social Care in the Community

Health services for young adults with stroke: A service mapping study over two Australian states

Giummarra, M.J, Power, E., Stolwyk, R., Crotty, M., Parsons, B., Lannin, N.A.

DOI Link: https://doi.org/10.1155/2024/8762322

Go to external website

24 Apr 2025

International Journal for Equity in Health

How accessible are the websites of health services for people who have had a stroke?

Giummarra, M. J., Brown, E., Rose, T. A., Lannin, N. A, Parsons, B., & Power, E. on behalf of the Young Stroke Service team

DOI Link: https://doi.org/10.1186/s12939-025-02459-6

Go to external website

9 Jul 2025

NPJ Digital Medicine

UI/UX design requirements for young stroke survivors: recommendations from the literature

Passey, D., Ferdous, H., Burns, K., Gilbert, C., Power, E., Rose, T., Bernhardt, J., Thijs, V., Capurro, D.

DOI Link: 10.1038/s41746-025-01796-8

Go to external website

Conference Papers

2023

23 Jan 2023

Advances in Stroke Recovery- Scientific Conference

It takes a village: Building Australia's first dedicated service for young adults with stroke

Borschmann, K., Thijs, V., Bladin, C., Brodtmann, A., Capurro, D., Crotty, M., Gittus, R.,Giummarra, M., Gray, K., Hayward, K., Kesic, Z., Lannin, N., McCambridge, L., Murphy, L., Parsons, B., Power, E., Withiel, T., Wong, D., Xie, I., Bernhardt​., J

24-26 May 2023

European Stroke Organisation Conference

Identifying the unmet needs of young people with stroke who have communication or cognitive needs

Borschmann, K., Power, E., Wong, D., Lawson, D., Wolfenden, B., Keating, J., Lannin, N., Withiel, T., Thijs, V., Bernhardt., J

22-25 Aug 2023

Stroke Society Conference

Expert rehabilitation and allied health services for young adults with stroke are lacking: A mapping study of Victorian and South Australian Services

Giummarra, Melita J., Stolwyk, Rene., Crotty, Maria., Parsons, Brooke., Power, Emma., Sharpe, Vanessa., and Lannin, Natasha.,on behalf of the Young Stroke Service project investigators

22-25 Aug 2023

Stroke Society Conference

Championing Better Care for Young People with Stroke: Australia’s New Young Stroke Service

Borschmann, K., Thijs, V., Capurro, D., Wong, D., Power, E., Lannin, N., Giummarra, M., Rose, T., Cadilhac, D., Parsons, B., Murphy, L., Hayward, K.S., Withiel, T., Brodtmann, A., Bladin, C., Crotty, M., Bernhardt, J.

22-25 Aug 2023

Stroke Society Conference

Addressing the Challenges of Stroke in Younger People: Australia’s Young Stroke Service

Thijs, V., on behalf of the Young Stroke Service project investigators

22-25 Aug 2023

Advances in Stroke Recovery- Scientific Conference

Championing underrepresented populations in stroke care and research: Young stroke

Wong, D. on behalf of the Young Stroke Service project investigators

10-12 Oct 2023

World Stroke Conference

Championing Better Care for Young People with Stroke: Australia’s New Young Stroke Service

Borschmann, K., Thijs, V., Capurro, D., Wong, D., Power, E., Lannin, N., Giummarra, M., Rose, T., Cadilhac, D., Parsons, B., Murphy, L., Hayward, K.S., Withiel, T., Brodtmann, A., Bladin, C., Crotty, M., Bernhardt, J.

4 May 2023

Australasian Society for the Study of Brain Impairment (ASSSBI)

Accessibility of Rehabilitation Health Service Websites following Stroke: A Need for Improved Implementation of Web Accessibility and Communication Access Guidelines

Giummarra, M., Brown, E., Rose, T., Lannin, N., Power, E., on behalf of the Young Stroke Service project team

2024

16-17 May 2024

European Stroke Organisation Conference (ESOC)

Establishing a new health service model to support life after young adult stroke

Borschmann., K., Power, E., Wong, D., Lannin, N., Parsons, B., Capurro, D., Cadilhac, D., Crotty, M., Bernhardt, J., Thijs, V., on behalf of the Young Stroke Service project team.

1-6 Jun 2024

International Society of Physical and Rehabilitation Medicine (ISPRM)

Processes of care for young adults who have had a stroke: Which aspects of healthcare are not patient-centred?

Giummarra, M.J., Reeder, S., Power, E., Rose, T.,  Wong, D., Crotty, M., Levy, T., Borschmann, K., Bernhardt, J., Thijs, V., Lannin, N., on behalf of the Young Stroke Service project investigators

1-3 Jul 2024

International Aphasia Rehabilitation Conference (IARC)

Are health service websites accessible for stroke survivors with aphasia?

Power, E., Rose, T.A., Giummarra, M., Brown, E., Parsons, B., Lannin, N., on behalf of the Young Stroke Service project team

1-3 Jul 2024

International Aphasia Rehabilitation Conference (IRAC)

Australia’s first Young Stroke Service: Embedding communication inclusion and access across multi-disciplinary clinical services, evaluation, and research.

Power,E., Giummarra, M.J., Borschmann, K., McCambridge, L., Weaver, S., Heyes, B.,Cannell, G., Parsons, B., Wong, D., Xie, I., Lannin, N.A., Hutchins, S.,Capurro, D., Ferdous, H., Gittus, R., Hayward, K., Crotty, M., Kim, J.,Cadilhac, D., Brodtmann, A., Thijs, V., Bernhardt, J., on behalf of the Young Stroke Service project team

1-3 Jul 2024

International Aphasia Rehabilitation Conference (IARC)

Getting communication inclusion into Australia's first Young Stroke Service.

Power, E., Rose, T.A., Giummarra, M., Borschmann, K., Weaver, S., Heyes, B., Cannell, G., Wong, D., Parsons, B., on behalf of the Young Stroke Service project team

3-5 Jul 2024

Global Neuropsychology Congress

Using hub-and-spoke telehealth models to translate neuropsychological rehabilitation interventions into community-based services

Wong, D., Bernard, C., Carrier, S., on behalf of the Young Stroke Service team.

29-30 Aug 2024

Smart Strokes

Establishment of Lived Experience Contributor Group for the Young Stroke Service: A Journey in Co-design and Production

Parsons, B. , Borschmann K, Weaver S, Rose T. on behalf of the Young Stroke Service team.

29-30 Aug 2024

Smart Strokes

Filling Gaps in Care for Young Adults After Stroke

Amesz, S., Taylor​, M., Borschmann, K., Wong, D., Lannin, N., Power, E., Withiel, T., Rose, T., Lonergan, A., Bernhardt, J., Crotty, M., Thijs, V.,  and the Young Stroke Service Project team.

25-28 Sep 2024

Asia Pacific Stroke Conference (APSC)

Unmet needs, quality of life, mood and cognition amongst young adults accessing the Young Stroke Service

Amesz, S., Borschmann, K., Park, A., Taylor, M., Wong, D., Lannin, N., Power, E., Withiel, T., Major, B., Lonergan, A., Bernhardt, J., Crotty, M., Thijs, V., and the Young Stroke Service Project team.

13 Dec 2024

Organisation for Psychological Research Into Stroke (OPSYRIS) Conference

Co-producing accessible, meaningful neuropsychological assessment summary letters for young adult stroke survivors

Wong, D., Simpson, L., Kelso, W., Bradshaw, J., Grech, M., Cannell, G., Gough, M., Heyes, B., Karisson, O., Richards, A., Tan, D., & Rose, T., on behalf of the Young Stroke Service team

13 Dec 2024

Organisation for Psychological Research Into Stroke (OPSYRIS) Conference

Characterisation and evaluation of the Young Stroke Service (YSS) Neuropsychological Intervention Service

Wong, D., Watson, L., Bernard, C., Carrier, S., & Lawson, D., on behalf of the Young Stroke Service team

2025

15 May 2025

32nd Workshop for the International Stroke Genomics Consortium

Characterising young adult stroke phenotypes and recovery trajectories. The Young Stroke Service Deep Phenotyping Study

Ramage, E., Brodtmann, A., Hayward, K., Ferraro, M., Lannin, N. A., Korajkic, N., Parsons, B., Tan, D., Wong, D., Thijs, V., on behalf of the Young Stroke Service Project Team

11-14 Aug 2025

National Allied Health Conference

Understanding young stroke survivors: identifying and addressing unmet needs

Brown, A., Judd, L., Major, B., Amesz, S., Borschmann, K., Wong, D., Lannin, N., Withiel, T., Power, E., Rose, T., Bernhardt, J., Crotty, M., Thijs, V., on behalf of the Young Stroke Service project team

2-5 Sep 2025

Australian and New Zealand Stroke Organisation (ANZSO) Conference

Young Stroke Service Deep Phenotyping (YSSDP): Exploring recovery in young adult survivors of stroke

Korajkic, N., Ferraro, M., Brodtmann, A., Hayward, K., Lannin, N., Parsons, B., Tan, D., Wong, D., Thijs, V., Ramage, E.

2-5 Sep 2025

Australian and New Zealand Stroke Organisation (ANZSO) Conference

Three-year update on Australia's Young Stroke Service

Borschmann, K., Amesz, S., Cadilhac, D., Korajkic, N., Lannin, N., Major, B., Power, E., Parsons, B., Rose, T., Wong, D., Thijs, V., on behalf of the Young Stroke Service project team

2-5 Sep 2025

Australian and New Zealand Stroke Organisation (ANZSO) Conference

Characterisation and Evaluation of the Young Stroke Service (YSS) Neuropsychological Intervention Service

Wong, D., Watson, L., Carrier, S., Bernard, C., Dao, D., Davies, A., Lewis, J., Lawson, D., & Lannin, N. on behalf of the Young Stroke Service team

3-4 Oct 2025

Australian Clinical Neuropsychology Association (ACNpA) Conference

Co-producing accessible, meaningful neuropsychological assessment summary letters for young adult stroke survivors.

Wong, D., Simpson, L., Kelso, W., Bradshaw, J., Grech, M., Cannell, G., Gough, M., Heyes, B., Karisson, O., Richards, A., Tan, D., & Rose, T. on behalf of the Young Stroke Service team.

22-24 Oct 2025

World Stroke Congress

Designing a longitudinal deep phenotyping study in young adults with stroke to examine recovery trajectories

Ramage, E., Borschmann, K., Amesz, S., Brodtmann, A., Crotty, M., Capurro, D., Ferraro, M., Hayward, K., Korajkic, N., Lannin, N., Parsons, B., Tan, D., Wong, D., Thijs, V., on behalf of the YSS project team

5-7 Aug 2025

Austin ResearchFest

Three-year update on Australia's Young Stroke Service

Williams, A., Borschmann, K., Amesz, S., Cadilhac, D., Korajkic, N., Lannin, N., Major, B., Power, E., Parsons, B., Rose, T., Wong, D., Thijs, V., on behalf of the Young Stroke Service project team

2026

31 Jul - 2 Aug 2026

APS College of Clinical Neuropsychologists Conference

Young stroke survivors' perspectives on neuropsychological assessment and co-produced feedback letters

Grech, M., Withiel, T., Simpson, L. & Wong, D.

11-12 Aug 2026

Austin ResearchFest

Referral patterns of Victorian stroke survivors accessing the ‘Young Stroke Service’

Williams, A., Borschmann, K., Tomkins, M., Amesz, S., Lannin, N. A., Wong, D., Bernhardt, J., Thijs, V., on behalf of the Young Stroke Service Project Team

18-21 Aug 2026

Australian and New Zealand Stroke Organisation (ANZSO) Conference

Mental health concerns of young people accessing the Young Stroke Service

Williams, A., Borschmann, K., Amesz, S., Wong, D., Power, E., Lannin, N., Crotty, M., Major, B., Bernhardt, J., Thijs, V., on behalf of the Young Stroke Service project team

Click to other pages

A scientist in a lab coat and gloves looks into a microscope in a bright lab.

Research Projects

Learn more about our research for young stroke
Blue Arrow pointing right
A person holds a phone at a table with a notebook and laptop in a cozy workspace.

Research Volunteer Registry

Find out how to contribute to young stroke research
Blue Arrow pointing right
Group photo of the YSS team

Our Team

Meet the people behind the Young Stroke Service
Blue Arrow pointing right
A close-up of hands holding a smartphone, with a person wearing a yellow shirt in the background.

Contact Us

Get in touch with a member of our team
Blue Arrow pointing right
Page last updated: August 2026